Tuesday, August 3, 2010

Patience Part 2

This post is titled patience because that is a lesson we are learning throughout our stay at the NICU.  It is also titled Patience Part 2 because after a three day break from the CPAP, Ainsley was put back on CPAP of four.  Again she was needing more oxygen to maintain her O2 saturation levels.  This was her way of telling us she needs more support and isn't quite ready to be off of the CPAP.

So, it is back to CPAP for at least a few days to help re-recruit her alveoli (alveoli are the primary gas exchange units of the lungs).  Then when the doctors/NNPs feel like she is ready we will try again.  As we have mentioned before there is no way to know when/if a baby is ready to go off of CPAP - instead the doctors watch for signs that she/he is ready and then see how she does.  We have been told that it often takes a few days to see if he/she is ready, the signs (desaturation of oxygen levels, more apnea or bradys) show up and let you know that the alveoli have collapsed and he/she is struggling to get enough oxygen.

It was difficult to see Ainsley put back on CPAP.  It feels like a step backward.  But of course if she needs the support we absolutely want her to have it.  The staff have reminded us that many times babies at Ainsley's gestation go on and off CPAP as their lungs are maturing.

Also, this time she was able to be off of CPAP for three days and last time she was off for only about seven hours.  We so enjoyed seeing her face without the hat and extra tubes as well as the ease of picking her up.  And so, we are learning to be patient.

Here are a couple of pictures from her mini-vacation from the CPAP.  You can she how big she is getting - she is up to 4lbs 10.8oz!  Keep it up baby girl!!








2 comments:

sherry said...

patience outside nicu...what a reminder that our baby Ainsley needs the special staff watching and tending to her needs.I understand 2 steps forward 1 step back.It is so easy to see her progress and forget her actual due date was still quite a ways out there.We love you mommy and daddy and continue to pray for stength and yes patience beyond what many of us can imagine day after day in nicu.You are loved!

Merry said...

She is such a beauty. Heather and Brando, I see the "I've fallen in love" look on your faces. Still praying!!!!